Allergy Shmallergy

Simplifying life for families with food allergies.

Positive Parenting with Food Allergies September 29, 2017

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Last year, I had the pleasure of speaking with Lyndsay Edwards of Allergy Blog Awards UK.  In her podcast, she asked a lot of thought-provoking questions on the topic of parenting a child with food allergies.

 

Because of the challenges and risks associated with food allergic reactions, it is critical to raise food allergic children to be confident, resourceful, and self-advocating.  And all of that begins with a good attitude towards food.

 

Here is the transcript of Lyndsay’s well-crafted podcast [or listen here: Allergy Blog Awards UK – Allergy Shmallergy Living Positively with Food Allergies].

 


 

So, I know your son was diagnosed with a dairy allergy at 6 months old and other allergies by the time he was just 15 months old, can you just take us back to that time and what it was like for you getting the diagnosis?

 

Despite his eczema, acid reflux and asthma (conditions that I now understand to be related to food allergies), I was in denial.  Even though I followed her instructions to the letter, I scoffed at our pediatrician’s recommendation to avoid feeding my son a whole host of allergens as we introduced first foods.  “He’s probably not allergic to any of these!” I remember saying.

 

When she called us to discuss the results of my son’s blood test, revealing that he was allergic to eight different foods in addition to environmental allergens, I was completely overwhelmed.  I couldn’t stop wondering:

 

What does this mean Not only the test results, but also in a bigger sense:  what does this mean for his life?  Will he have a normal life?  And more importantly, what can I feed him for dinner tonight?!!

 

I found myself grieving for the hopes and dreams I had imagined for my child (like baking cookies and spontaneous trips to get ice cream), but then my husband snapped me out of it.  He reminded me that we would find work arounds.  And, if they didn’t exist, we’d create them!  Very quickly, THAT became my focus.

 

 

How do you cater for your son at home?  Do you all eat the same?

 

Because my son was allergic to so many foods, I had to learn how to cook (and fast!).  Unbelievably, he’s my most adventurous eater.  He loves everything seafood (no matter how crazy the dish), sushi…  and he’s consistently adding requests to his list.

 

These requests inspire me to learn how to cook all kinds of intimidating international cuisine.  No one who knows me would have EVER guessed that I regularly cook Chinese food or Persian or make all kinds of sushi.  In high school, I once burnt soup!  SOUP!

 

When he was a toddler (and an only child), I was making separate meals for my son.  But being a short order cook isn’t my strong suit and I didn’t want my son to feel like I was treating him differently because of his allergies.  In his own home, he should feel safe and included.  As I got better at reading recipes, swapping out his allergens for substitutes, I started serving only one meal (what a relief!).  I also began finding meals with optional parts (like tacos that you could stuff with cheese or not and make-your-own pizza night).  I now have quite a collection of tried and true recipes that are free of peanuts, tree nuts, sesame seeds, dairy and in many cases egg (an allergy my son has since outgrown).

 

 

When did you start your blog and what inspired you to do so?

 

It was very important to us to raise a confident child who felt capable in the world.  Food allergies are very stressful.  I wanted to share simple solutions with other parents and put out useful information so that families can remain calm and make informed decisions.

 

 

One of the things that really stood out for me on your blog is how you focus on teaching your son about his food allergies in such a positive way so that he doesn’t feel left out or sad, can you just explain how you do that and what has worked for you and your son?

 

We have repeated the message that everybody deals with something – sometimes that “something” is invisible to the eye, like food allergies.

 

We try to downplay the importance and emphasis on food.  For example, we try to reward achievements with activities rather than treats.

 

And, we remind all of my kids that the best party of any party is always the company, hardly ever the cake.

 

Involve your kids in problem solving.  We can’t control the fact that my son has food allergies, but I can give some control OVER them by getting his input on overcoming obstacles.

 

Prepare, prepare, prepare to provide special treats in anticipation of special events.  Bring a gluten-free cupcake to the party; pack a sesame-free hamburger bun for the barbeque; carry a little dairy-free butter out to dinner.  Create positive experiences around food and demonstrate how easy it is to overcome challenges.

 

Let him vent!  We’ve taught my son the names for his feelings and encouraged him to talk about them.  First, children need to know the language to use to express their emotions.  Then they can engage in an open dialogue to release stress and give parents an insight into how they are experiencing the world.

 

 

Ok, before I get to my last question, can you tell everyone where they can find you on social media, your website, etc?

 

Yes, of course!

[You all know where Allergy Shmallergy is! shmallergy.wordpress.com]

Twitter: @shmallergy

Facebook:  Allergy Shmallergy

Instagram: shmallergy

 

 

And my final question is if you could give allergy parents one tip, what would it be and why?

 

Help prepare your child to negotiate the real world: practice asking questions, allow them to speak to a waiter, in short: EMPOWER them!  Give them the tools to tackle the world!

 

And, provide a safe place for them to come home to. A safe home environment (free of allergens) as well as a safe space psychologically where they can relay their triumphs and articulate their frustrations without judgment or anxiety and find support.

 

That’s two tips (sorry!), but I hope they’re both helpful!

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Ask Me Anything! September 19, 2017

Filed under: Parent Sanity — malawer @ 11:33 am
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My older child has food allergies.  Now, I’m afraid to introduce his allergens to his younger sibling.  I know I need to, but how can I do it safely?

 

Great question!  And, many of us can relate to your concerns.

 

What is the real risk?

Here’s something encouraging to keep in mind:  Most siblings of kids with food allergies do not develop food allergies themselves.  Studies by lead author Dr. Richi Gupta (2015) showed that siblings only have a minimally higher chance of having food allergies.  And, researchers warned against having siblings allergy tested before introducing food because it increases the odds of false positives, resulting in avoiding foods unnecessarily.

Bottom Line:  Most siblings have no greater risk of having food allergies than any other kid without a food allergic sibling.  That offers a little relief!

 

New Feeding Guidelines:

In January 2017, the experts at the National Institute of Allergy and Infectious Diseases (NIAID) recommended feeding infants appropriate eggs, fish, dairy, peanut-containing foods (not whole peanuts for fear of choking), or other highly allergenic foods between 4 and 6 months after speaking with your pediatrician.  Contrary to advice many of us were given with our first child, research now shows that delaying introduction may actually increase your baby’s risk of developing food allergies.

 

[Please read: Understanding the New Peanut Allergy Prevention Guidelines for more information and a list of peanut-containing foods.]

 

Bottom Line: You’re actually HELPING your baby by introducing highly allergenic food on time by reducing his/her risk of developing food allergies.  Now’s the time to overcome your fear!

 

What’s the best way to introduce your baby to a food your older child is allergic to? 

After your pediatrician okays introduction and your baby consistently tolerates solid food, plan to introduce one food at a time waiting 3-5 days in between new foods.

  • For the first introduction, buy the new food in single serving size if possible.  This limits accidental exposure and cross contamination risk.  Be sure to store extras, if any, somewhere out of reach of your older child.
  • It might be easiest to introduce a new food when you are alone with your child, so that you can carefully serve the first food, clean up, and observe for reactions.
  • Consider taking your baby on a picnic or outing close to home to minimize your concern about crumbs in the house.
  • Bring your cellphone with you in the unlikely case of a reaction.
  • Remember, that dishwashers are an effective way (but not the only way!) to wash away allergens.  And, hand sanitizers do not get rid of food protein.  Wash hands with soap and water after handling your older child’s allergen.
  • Feed your baby the new food then wait 10  minutes, looking for signs of negative reaction: hives, swelling, behavioral changes or trouble breathing.  If no reaction occurs, continue feeding and monitor for about 2 hours.

When my younger two children were ready to try peanut-containing food, I bought snack size peanut butter cracker sandwiches.  I took each child separately to the local park and had a picnic.  We brought lots of wipes to clean hands and mouth before returning home without a reaction!  It was a special (and productive) day for us both.

 

How Do I Keep Allergenic Food Safely in the House?

Once you’ve established that your baby isn’t allergic to each new food, you may wish to continue keeping it on hand in your home.  Often it is necessary for him or her nutritionally to continue eating allergenic foods like milk, eggs, wheat, etc.  But, it’s important to store the foods your older child is allergic to safely so that your older child avoids accidental ingestion and reaction.

 

If you haven’t already done so, consider implementing a system to label the safe foods in your kitchen  Please read, Food Labels to see the simple system we use here at my house.

 

Think of what a relief it will be once you know your baby can tolerate each new food.  You can do this!  Good luck!

 

 

The Language of a Food Allergic Reaction September 11, 2017

A food allergic reaction can vary from mild to severe and typically takes place shortly after eating or exposure.  All reactions require immediate attention.  But with severe allergic reactions, called anaphylaxis, minutes matter.

 

As kids head back to school and begin new activities, it’s important for EVERYONE to become familiar with the symptoms of anaphylaxis and what it language a young child might use to describe it.

 

Symptoms of Severe reaction

Some of the symptoms of a severe reaction are obvious: hives, vomiting, coughing.  But for others, we need to rely on verbal clues.  Young children may describe an allergic reaction a little differently than adults would.

 

Language of Food Allergic Reaction

 

Should you suspect that your child, or one in your care, is experiencing anaphylaxis, act immediately:

  1. Administer epinephrine, holding pen for 5-10 seconds in meaty part of outer thigh.
  2. Call 911.
  3. Contact parents.

 

Minutes matter when it comes to treating anaphylaxis.  Knowing the symptoms and the different ways it might be described will help you save a life.

 

 

Advocacy: Sesame Seed Labeling September 7, 2017

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Carol M. Highsmith [Public domain], via Wikimedia Commons

Last week, I teamed up with Allergy & Asthma Network, a leading non-profit, to begin a discussion about adding sesame seeds to ingredient labels.  We met with committees on Capitol Hill who were receptive to our argument.  It’s a first step in a potentially long process – but a step in the right direction!

 

Sesame: the 9th Food Allergen? explains the rise in sesame allergy and the difficulty faced by those who are allergic.  When the Director of the Division of Pediatric Allergy and Immunology at Johns Hopkins University School of Medicine, Dr. Robert Wood spoke to WebMD in 2012, he believed sesame seed allergy was so prevalent that it had likely climbed to the 6th or 7th most common allergen in the U.S.

 

Without required labeling, sesame seeds can be masked under many different names.  They appear in both food as well as hygiene and beauty products.  There is a relationship between tree nut allergies and sesame seed allergy – those allergic to one are three times as likely to be allergic to the other.  But unlike nut allergies, sesame oil can cause potentially severe reactions for those who are allergic.

 

Currently, only the “Top 8” allergens are required to be explicitly labeled in the United States.  Those allergens are:

Dairy

Eggs

Soy

Fish

Shellfish

Peanuts

Tree Nuts

Wheat

Many other industrialized nations already label for sesame seeds including Canada, the European Union, Australia, and Israel.

 

I will keep you posted on new developments as we continue to speak to decision-makers on this and other key allergen issues.

 

New Snack Alert! Enjoy Life Granola Bars September 6, 2017

Note: Enjoy Life sent me their new granola flavors to sample.  I am reviewing because I truly enjoyed them and believe they are a good product for families like mine.

Your lunch game just got easier.  Enjoy Life recently released granola bars in a few new flavors – and they are anything but ordinary.  While on vacation with our extended family, we decided to have a taste test.  We’re a picky crew, because between us we are allergic to:  peanuts, tree nuts, sesame seeds, dairy, eggs, pineapple, shrimp, salmon and gluten (celiac).

 

Amazingly, these were a big hit with everyone, allergic and otherwise.  Everyone had their own favorite flavor.  Mine was the Caramel Blondie.  Sweet and buttery, the caramel tasted fantastic dotted with chocolate chips.  Why hasn’t this flavor been created sooner?!

My cousin, a chef, loved the Carrot Cake granola bars.   The cinnamon-y, pumpkin spice flavor was just right balanced against the sweet carrot taste.  Your kids will LOVE eating their vegetables this way!  If only it counted towards their daily intake!

Her daughter, 6, preferred the Lemon Blueberry Poppy Seed.  What a sophisticated palate – clearly the child of a cook!  These were moist and delicious like the others.  The blueberry and poppy tastes were complimented by the citrusy lemon.  Yum!  I’d eat these for breakfast!  Is that a thing?!

 

Best of all, as always Enjoy Life is free from: gluten, wheat, peanuts, tree nuts, dairy, eggs, soy, fish and shellfish and are Kosher and Halal and non-GMO.