Allergy Shmallergy

Simplifying life for families with food allergies.

What is Lupin Allergy and Why You Should Care June 26, 2017

Lupin allergy is on the rise.  But most people haven’t even heard of lupin in the first place.    Travelers to Europe, Australia, Canada, the Mediterranean and even the U.S. should become familiar with it.  So should those who are gluten-free as well as those who have a peanut or soy allergy.

 

Read the article I recently wrote for the Allergy & Asthma Network, entitled “Why Is Lupin Allergy Becoming More Common?” to find out what lupin is, where it is found and who is most at risk for a reaction.

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Why Is Lupin Allergy Becoming More Common?
from the Allergy & Asthma Network dated June 14, 2017

 

Have you heard of lupin? Don’t feel bad; most Americans haven’t heard of it either. But that’s likely to change.

 

What is lupin?

Lupin (or lupine) beans are legumes – putting them in the same plant family as the peanut. Lupin beans are high in antioxidants, dietary fiber and protein and low in starch. And like all legumes, they are gluten-free.

Lupin beans are commonly used in Mediterranean cuisine. Sometimes ground into flour and blended into regular wheat flour, lupin is also widely used in Europe and Australia. There, lupin is frequently found in baked goods and pastas as well as breads, sauces, beverages (such as beer) and meat-based products like sausage and hamburgers.

Lupin is showing up in the United States as well. It appears most often as a substitute for gluten or soy in free-from products as well as replacement for genetically modified ingredients and animal proteins (primarily dairy and egg).

 

Can you be allergic to lupin?

Although not one of the “Top 8” allergens, lupin is beginning to make headlines in the food allergy world. For many, eating products containing lupin is completely safe. However, for a few, lupin can trigger an allergic reaction. The odds of having a reaction are higher if you already have a peanut allergy. This is called cross-sensitivity.

There is no evidence that lupin allergy is more severe than other allergens. Like all allergic reactions, symptoms vary. Those who are allergic to lupin have reported reactions ranging from hives, swelling of the lips and face, to gastrointestinal and respiratory distress, and cardiovascular issues.

 

Do manufacturers label for lupin?

Due to the frequent use of lupin in European and Australian packaged goods, coupled with reports of allergic reaction, manufacturers in the European Union are required to label for lupin. But this requirement is voluntary in places like the United States, Canada, Australia and other parts of the world where you may find lupin listed among other ingredients without special emphasis. U.S. laws and regulations only require labeling to highlight the Top 8 allergens.

Those allergic to lupin or unsure should be careful of unlabeled, over-the-counter baked goods like pastries sold at a bakery, bread rolls served at a restaurant or beer at a local pub.

 

Other names for lupin are:

  • Lupin Bean/Flour
  • Lupine Bean/Flour
  • Lupin Seed
  • Lupini
  • Termes
  • Altramuz
  • Tarwi
  • Termos

While lupin is currently popular in Europe, its presence is increasing in the United States and elsewhere. As the demand for gluten-free and other free-from goods grows, so may the use of lupin.

If you are concerned you may be allergic to lupin, speak to your board-certified allergist to discuss level of risk, testing and prevention strategies. Avoiding the allergen is the only way to prevent an allergic reaction.

 

 

 

 

6 Tips for Traveling with Food Allergies March 7, 2017

pool-690034_1920 via pixabay

 

Spring break is on the horizon!  Can you smell the fresh air already?  Are you mentally packing your bags? (I am!)

 

Here are a few tips when traveling with food allergies:

locking-knob-883059_1920 via pixabay

  1.  Call your airline and inquire about their food allergy policy in advance.  Ask specifically about early boarding and in-flight announcements.
  2. Most airlines will allow passengers to board the plane early in order to wipe down surfaces (this includes seat backs, seat belts, tray tables and knobs, armrests). Be sure to bring enough baby wipes or antibacterial wipes (such as Wet Ones) to cover all the legs of your travel.  Again, ask about pre-boarding at the gate.
  3. Carry your epinephrine auto-injectors and antihistamines ON BOARD.  Do not pack these away in your luggage.  [*ALLERGY SHMALLERGY TIP*: Zyrtec makes dissolvable tablets which eliminate the worry over bringing liquids through security as well as anything spilling in your bags.]
  4. If you’re traveling to a warm weather destination, you’ll need to remember to keep your epinephrine auto-injectors at room temperature – even while enjoying the beach or pool.  Pack a cool pack (like this one) and an insulated bag (like this cute lunch bag).  Store the cool packs in your hotel’s mini-fridge (who needs a $15 bag of M&Ms anyway!?) or plan on ordering a to-go cup of ice to keep the medicine cool poolside.
  5. A hotel or resort’s food services manager can usually help you navigate menus.  On our last vacation, the food services manager had food allergies himself and was invaluable in hunting down ingredients and safe alternatives for our family.  Befriend this fantastic person!
  6. If you’re planning on visiting an amusement park, taking a hike or being similarly active, consider packing a backpack into your luggage (or use one as your carry-on!).  You’ll need to bring your epinephrine auto-injectors wherever you go – especially on vacation when you’re away from home cooking, familiar restaurants and local knowledge of hospitals and doctors.  Backpacks can make carrying it easier depending on the activity – simply slip the insulated bag into your backpack and go!

 

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Two more notes:

  • Airline travelers should bring their own snacks/meals on board flights to ensure their safety.
  • Refrain from using airplane blankets and pillows as allergen residue may reside there.
  • Bring a baby or antibacterial wipe to the bathroom to wipe down door  and knob handles.

 

 

 

Summer Chic and Simple Food Allergy Solutions July 22, 2016

Filed under: Parent Sanity,Preparedness,Travel — malawer @ 4:39 pm

It’s hot out there! And, as you know, carrying epinephrine is tricky in warm weather. Here’s how I’m carrying my son’s epinephrine autoinjectors these days.

 

Because the heat is intense these days, be sure to pack your epinephrine in some kind of cooler when you’re outside. Ideally, epinephrine should be stored at 77 degrees F. (25° Celsius). But while you’re out and about, manufacturers recommend that epinephrine be kept between 59° and 86°F.

 

I recently found this cute, envelope shaped cooler bag in our local supermarket for under $5.   It’s stylish on its own (like a clutch!) and fits nicely in both my purse and pool bag.  A similar style can be found here:  Igloo Lunch Clutch.

I stick a lunch box sized cooler pack in the insulated cooler bag, throw in my Emergency On-The-Go Pack already stocked with my son’s autoinjectors (or wrap them in a kitchen towel) to keep them right around room temperature.  Sometimes, I’ll throw in a juice box (someone always wants one anyway) to create a buffer between the cooler pack and epinephrine.

 

Stylish AND safe!

Igloo Clutch with my Emergency On-The-Go Pack

 

Everything fits perfectly!

 

Save

 

Play Ball! March 30, 2016

I love seeing more and more stadiums adopting the peanut-free game concept.

 

Lucky for us in DC, the Washington Nationals just released their peanut-free game schedule.

Sat. April 23 at 1:05 vs. Twins

Sun.  May 15 at 1:35pm  vs. Marlins

Sat. June 11 at 12:05pm vs. Phillies

Fri.  July 1st at 6:05pm vs. Reds

Sun, Aug. 14 at 1:35pm vs. Braves

Sat. Sept. 10 at 7:05pm vs. Phillies

 

Call or contact the stadium directly for ticket pricing and further information.

 

Not a Nats fan?!  (What’s wrong with you?!  Just kidding.)  Check your local team’s website for their own schedule of peanut-free games.  Don’t forget minor league teams who are awesome about getting in on the action and making baseball fun and safe for everyone.

 

UPDATE:

Rejoice, Seattle fans!  I just heard from the Mariners!

For the past several years, we’ve been offering the opportunity for fans with peanut allergies to come to games at Safeco Field and sit in sections with a reduced risk of exposure to peanuts.  Information about the games, the precautions we take and a special ticket offer is all available at Mariners.com/NoPeanuts.

 

“Take me out to the ballgame.  Take me out to the crowd! Buy me some pretzels and cold snow cones…”

 

 

 

 

Skiing Mount Snow: A Food Allergy Review February 8, 2016

(Please read: Lift Lines and EpiPens: Skiing with Food Allergies)

 

 

Last March, we took a ski vacation up to Mount Snow in Vermont.  The folks at the mountain were extremely helpful when it came to food allergy issues, including handing over ingredient lists for us to review.  And, as it turns out, my son’s ski instructor was well-versed in carrying epinephrine as his younger brother had food allergies.  We had SUCH a great experience there, I wanted to pass along a few *specific* points of information for those of you thinking about going.

We were happy to learn that the hamburger buns at all lodges were sesame seed-free and SAFE for my son!  An unusual find!

Not a great photo from my frozen hands, but the chicken nuggets were made by Tyson, a brand we deem safe at home.  Dairy, egg, sesame seed, peanut and tree nut-free.

For those of you on a gluten-free diet, you’ll be excited to hear that they not only offered gluten-free bread at the main lodge, but they sold Liz Lovely gluten-free cookies as well as Monkey Chew nut-free, gluten-free granola bars.  Woohoo!

For dinner, we found this great restaurant, Last Chair.  The food was excellent, the manager and waitresses knowledgeable about food allergies PLUS they have an arcade to entertain the kiddos while you wait for a table.  A win all around!

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Clearly NOT dairy-free, but check out that plate of nachos.  That’s a PIZZA TRAY underneath.  The Last Chair is not skimping on portions!

 

Lift Lines and EpiPens: Skiing with Food Allergies

As I look out my window, I’m surprised to see green again. Grass is finally peeking through after we received nearly 30 inches of snow.  Even after all that shoveling, all I wish for is that powdery white.  When February hits, all I want to do is ski.  Maybe it’s a holdover from my childhood when we used to get a mid-winter February break – a kind of Pavlovian yearning to be cruising down the slopes this month. Either way, when I see snowflakes, I think trails.
When my food allergic son was old enough, my husband (an avid skier) was ready to enroll him in ski school.  But the idea of trying to manage food issues on a ski vacation seemed challenging.  For one, ski lodges never seem that organized.  I couldn’t imagine who I might track down to get ingredient information on their chicken nuggets, for example – especially at mid-mountain or higher.  Secondly, there’s SO MUCH gear, etc to bring to the slopes, how was I going to carry (and where could I store and easily access) snacks and lunch for him if we brought some from home?  Finally, could I reasonably rely on the ski school to look out for him at lunch vis-à-vis his food allergies?

Well, fast forward almost 8 years, and I can happily tell you that we’ve had a lot of success on the slopes.  Here are some tips I’ve learned over the past few years:

1. Call ahead – way ahead.  Ski lodges are not nearly as disorganized as I had thought.  They’re just a lot more relaxed.  But they take food safety seriously. Be prepared to leave a message and have someone get back to you.  There is typically a food services manager who is knowledgeable about the suppliers and who can track down ingredients for you.  Be sure to ask where kids in ski school usually eat and what kinds of food they receive (are they given snacks, do they have free range on the cafeteria line, etc).

2. Bring your epinephrine autoinjector and show up for ski school EARLY.  Meet with your child’s ski instructor – teach them how to use the autoinjector and WHEN.  Remind them that they will need to store it in an inside pocket of their ski jacket to keep it close to room temperature.

3. Find out where and when your child will be having lunch and consider meeting them to help them navigate the cafeteria line.  But DON’T expect to eat with them!  Skiing creates fast friendships and they’ll have more fun hanging out with their ski buddies – go have a lunchtime date instead!

4.  Pack some safe snacks and store them in your ski locker, car or somewhere else that is readily accessible.  Kids are STARVING when they get off the slopes and cafeterias typically close right when the lifts do.

 

Now we just need some snow!  Happy trails in the meantime!

 

 

No-Brainer: Support a Bill to Place Stock Epinephrine on Airlines November 6, 2015

No Nut Traveler

My food allergy colleague and the brains behind No Nut Traveler, Lianne Mandelbaum, has helped introduce a bill to place stock epinephrine on airlines and train airline personnel on the symptoms on anaphylaxis and how to administer autoinjectors.

This is a safety measure that just makes sense.

An in-flight food allergy reaction is frightening and can be deadly.  It’s a situation that our family has experienced first hand.  My father-in-law DISCOVERED he was anaphylactic to shrimp (at age 40) on a transcontinental flight midway over the Atlantic Ocean.  Amazingly, there WAS an epinephrine auto-injector on the flight but the flight attendants wouldn’t deliver the injection, stating they needed a doctor to administer it.  When he flashed his medical credentials (he’s a surgeon), the attendants told him (as he ballooned and his condition became serious) that they required ANOTHER doctor to administer the life-saving medication.  Luckily, flight attendants and passengers assembled a hefty dose of Benadryl that helped ease the reaction until the plane landed several hours later.  Imagine having your first anaphylactic reaction as an adult to a food that you’ve loved and eaten safely for years? It could happen to anyone…

Lianne has helped inform Sen. Mark Kirk (R – IL) and Sen. Jeanne Shaheen (D – NH) who introduced bill S.1972, the Airline Access to Emergency Epinephrine Act of 2015, to Congress.  Current co-sponsors include Senators Ben Cardin (D-MD) and Mark Warner (D-VA).

I encourage you to read more about this bill and the efforts behind it at No Nut Traveler.  And, please reach out to your local representatives and ask them to support S.1972.  What an easy way to make air travel much safer!