Allergy Shmallergy

Simplifying life for families with food allergies.

Help Fund a Cure for Food Allergies January 10, 2017

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“Why can’t I just be like everyone else?”

If you have a child with food allergies, you’ve likely heard this heartbreaking sentiment from your kid.  We’ve all had to console this same child who just wants to put aside his/her food allergies and anxieties even if only for a single day.

Parents would go to any length for the sake of their kids.  Food allergy parents often do by preparing safe food, educating others, strategizing for school, holidays, play dates, and celebrations.

 

But how many of us have done 3,000 burpees for them?

 

That’s what fellow food allergy parent, Mike Monroe, plans to do on January 25th in order to raise money for ongoing research for a cure for food allergies.  Mike’s goal is to raise $50,000 to support cutting-edge research examining novel applications of cellular therapy for the millions of kids with food allergies being explored at Children’s National Medical Center in Washington, D.C.

 

marines_burpee-us-embassy-tokyo-flickr

marines_burpee by U.S. Embassy Tokyo via Flickr

 

What’s a burpee, you might ask?  It’s a combination of push-up/plank, squat and jump performed in combination.  Try one right now!  Do another.  I think you’ll agree: it’s NOT easy!  Mike plans to complete 3,000 of these in under 12 hours.

What can you do to support Mike?

 

1.  Watch this video about Mike’s incredible motivation – his son, Miles:

 

 

2.  Consider a donation:  Every little bit helps get us all closer to a cure for food allergies.

3K Burpee Challenge for Food Allergies

3.  Share this post!  Please share this with your family and friends, share via Facebook, Twitter, Instagram and other social media channels.  Let’s support Mike and researchers to help our own kids and the millions who face life threatening food allergies every day!

 

 

Donate:

http://childrensnational.donordrive.com/campaign/BurpeeProject

Blog:

http://www.3kburpeechallenge.com/

Facebook Page:

https://www.facebook.com/3KBurpeeChallenge/

YouTube Video:

https://www.youtube.com/watch?v=KSVGTkFtnyk&feature=youtu.be

 

Take the Reins in the New Year: Food Allergy Goals and Resolutions January 4, 2017

Filed under: Holiday,Uncategorized — malawer @ 8:00 pm
Tags: , , , , ,

happy-new-year-1063797_1280

 

It’s a new year!  A time to look ahead and move ever forward with our lives.  And with the beginning of each new year comes hope and possibility.

 

We’re moving forward into this new year with food allergies, so let’s do it with intention.  Let’s set some goals to color our journey and enrich our lives!

 

Here are some of my personal food allergy resolutions this year:

 

– Continue to foster a strong sense of self in my son. Empower him to speak up and stand strong.

– Arm him with enough information to help him make good, sound decisions – even as he approaches those risky pre-teen and teenage years.

– Teach my son cooking skills and creative work-arounds.  Balance his love of adventurous eating with a sense of both ingredients and process used to create various cuisines.  Asian fare with a sesame seed allergy?  Yes!  Dairy-free baking?  Of course!

– Continue to advocate for food allergy families everywhere – to make life easier and less stressful for everyone, ourselves included.

– Move forward in helping at-risk families with food allergies.  Learn more about ways to improve the lives of low income families, food insecure families, as well as those affected by natural disaster or other extenuating circumstances.

-Focus on food allergy education in schools and the greater community as well as positive parenting for food allergic families.

 

What are your food allergy goals for this year?  Let us know what you have on your radar for the year ahead.

  • Traveling with food allergies
  • Recipes and party ideas
  • Advocacy efforts
  • Latest research and treatment options
  • Empowering your child
  • Food allergies at school

 

What do you want to learn more about?

 

6 Sensational Books for Kids with Food Allergies December 19, 2016

The holidays are just days away!  Try giving a book that a family with food allergies will treasure.  Or, donate a book to your child’s classroom or school library!

 

Despite the growing number of cases, food allergic kids often feel alone with their allergy. It is so important for kids with food allergies to see this aspect of themselves reflected in literature and elsewhere.  Plus, these books are great teaching tools for both a child with a food allergy as well as their siblings and classmates!

 

1.The Bugabees – Friends with Food Allergies, by Amy Recob
Ages: preschool – 7
bugabees-book
Beautifully and colorfully illustrated, The Bugabees is a story about eight insect friends who each have one of the different Top 8 food allergies.  They talk about their need to stay away from various treats and lightly touch on allergic symptoms they might experience.  Importantly, the bugs each repeat a mantra for kids with food allergies which reinforces that they can have fun without their allergen!  My daughter immediately noted that her brother has food allergies and was singing along with their rhythmic mantra by the end!

 

bugybops-book

2.  The BugyBops – Friends for All Time is the sequel in which the Bugabees friends learn about why their friends avoid certain foods, what an EpiPen is and why it’s important, and what they can do to keep their friends safe.  This is a fantastic companion book to The Bugabees!  I would highly recommend for a classroom visit and school library.
Ages: preschool – 8

 

3. Joey Panda and His Food Allergies Save the Day: A Children’s Book, by Amishi S. Murthy, MD and Vivian Chou, MD
Ages: Preschool – 8
joey-panda-book

Written by two pediatric allergists, the story of Joey Panda – a kid with multiple food allergies who is nervous about his first day of school, a situation that many food allergy families face.  To Joey’s surprise, not only does he find out that many of his new friends are already familiar with food allergies but that he has the knowledge and power to become a superstar.  This is story that acknowledges a child’s fears about going to a new school with food allergies and turns it into a story of empowerment.  Just the kind I love!

 

4.  The Peanut Pickle, A Story About Peanut Allergy, by Jessica Jacobs
Ages: 3-8

peanut-pickle-book

Ben has a peanut allergy.  Sometimes he finds it hard to talk about.  But now that he’s six, he’s finding ways to tell family and friends about his food allergy.  Kids with food allergies will recognize themselves in Ben and the situations he faces – important for children who often feel alone with their allergy.  This is a great book for your child to practice what to say to keep him or herself safe.

 

5.  The Princess and the Peanut Allergy, by Wendy McClure
Ages: 5-9
The Princess and the Peanut Allergy

Centered around two best friends, Paula and Regina.  Regina wants a nut-laden cake for her birthday.  Her friend, Paula is allergic to peanuts – causing problems for them both.  The girls have an argument that is ultimately resolved when Regina realizes that having her nut-filled cake may compromise her friendship with Paula.  And, Regina surprises her friend by ordering her birthday cake nut-free.  The princess and pea analogy used to enlighten Regina works as a way of explaining that even the smallest bit of peanut could be extremely harmful to someone who is allergic to them.  Importantly, the book addresses some of the social issues that can arise from having a food allergy and helps articulate conflict resolution in an age-appropriate way.

 

6.  The Peanut-Free Cafe, by Gloria Koster
Ages: 5-9Grant is a new student at the Nutley School – where everyone enjoys PB&J at lunch. As a result, he’s forced to eat by himself at a peanut-free table.  In an effort get to know him, the school offers an irresistible peanut-free cafe for anyone willing to give up their peanut butter.  This story is clever and the idea of a creating a peanut-free cafe at our house and at his school greatly excited my son!

 

 

 

(Thank you in advance! A portion of the proceeds of affiliate links go toward AllergyStrong.org – an organization aimed at helping at risk families with food allergies.)

 

Holiday Stress? 4 Tips for Celebrating with Less Than Supportive Family December 14, 2016

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I hear from so many readers this time of year who just need to vent.   Reports of disappointment and frustration frequently get voiced over extended family that isn’t supportive – or, in extreme cases, is totally defiant of – a family’s food allergy concerns.

 

These incidents often center around the holiday table – at a time of year when parent anxiety can be heightened and when all parents put extra pressure on themselves to make the holidays magical for their children.  Family gatherings are typically filled with unspoken expectations.  Which is why it can be doubly disappointing (and sometimes volatile) when things go wrong.

 

Here are a few tips and tricks to help you relax and have fun with your extended family and friends as you celebrate this season:

 

  1.  Educate:  Many adults did not grow up knowing a single person with food allergies.  What comes off as careless to those of us who live this reality, may simply be a matter of ignorance.  A little education may go a long way.  If you want to start that process before you arrive, suggest they watch the Discovery Channel documentary, “Emerging Epidemic: Food Allergies in America.”
  2. Distract and Enjoy:  Perhaps you have a history of issues surrounding meals with your food allergies. If you know your family and your food allergies will not mix, don’t forego the time spent together.  Maybe you can host or help cook the meal.  Maybe you skip the meal and instead all go ice skating or sledding or on the hunt for the best Christmas lights in town.  New traditions will forge new memories!
  3. Be Flexible:  When it comes to the meal, we know you cannot compromise on safety.  Nor should you.  But if you can compromise on other parts of your visit, that may help reduce stress for all.  Be flexible when you can.
  4. Focus on Family:  Just remember that family relationships are important.  Not just to you but to your children.  Try to strengthen that relationship by creating positive memories throughout the year.  Having strong family bonds will defuse the anxiety and expectations of the holidays.

 

For further information about how to navigate family dynamics, please read Food Allergies and Family: Disagreements Not Break-Ups.

 

The Future of Food Allergies: Recommendations from the Experts December 8, 2016

Last week, the National Academies of Sciences put out a report outlining the gaps in global food allergy management.  Titled, “Finding a Path to Safety in Food Allergy Assessment of the Global Burden, Causes, Prevention, Management, and Public Policy,” the authors made recommendations that would lead to significant change in the quality of life of patients and families living with food allergies.

 

This was an important and informative report which helps prioritize ways in which we may see adjustments to food allergy diagnosis, information and policy in the future.  I listened to the live presentation while furiously taking notes, but you can read the report for yourself at:

nationalacademies.org/FoodAllergy

#foodallergies #peanutallergy medical doctor government law

 

In case you missed it, here are the highlights and some reflections:

 

Prevalence of Food Allergies:

The committee noted that although no formal studies have been able to corroborate the information, doctors across the country have confidently noted the increased prevalence of food allergies.  Studies of this sort are difficult to conduct and expensive, Dr. Hugh Sampson of the Icahn School of Medicine at Mount Sinai in New York noted.  However, the true prevalence of food allergies would help lawmakers and other health-related institutions prioritize food allergies as the “major health problem” it is in this country.  It is currently estimated that between 12 and 15 millions American are living with food allergies.

Recommendation: The CDC or other organization conduct a food allergy prevalence test that will help inform us of current food allergy levels and serve as a baseline for future assessments.

 

Standardized Diagnosis:

 

This is no one, standard way to diagnose food allergies.  Some doctors use skin tests (otherwise known as “scratch tests”) and some use IgE blood tests.  Still others consider the use of IgG testing to detect food intolerances.  Each test varies in conclusiveness and none can accurately predict the reaction a person will have to an allergen.  Only an oral challenge can determine the type and severity of an allergic reaction.

 

[More on this testing in a separate post.]

 

Recommendation: Doctors follow a standardized set of tests and protocols to inform them of a patient’s allergy and future medical action.

 

Prevention:

While there has been much in the news about best strategies to prevent food allergies from developing, advice on the ground from doctors and within parenting circles is lagging.

 

Recommendation: Clear, concise and solid advice about the early introduction of food and its benefits would greatly help parents and patients alike.

 

Education and Training

Misconceptions still abound.  Some dangerous.  Timely, proper management of food allergies saves lives.

 

Recommendation:  The launch of an educational campaign to align doctors, patients and general public regarding the diagnosis, prevention and management of food allergies.  This is especially important in organizations that provide emergency services as well as in medical schools and other healthcare institutions.

 

Policies and Practices

 

The list of major allergens identified in each country has not been updated since they were established in 1999.  And, labeling laws (particularly those known as Precautionary Allergen Labels, PALs – “may contain” and “made on equipment with” are two examples) aren’t currently effective at helping consumers assess risk.

 

Recommendation:  Reassess the priority list of major allergens to better identify regional allergens. Develop a new, risk-based system for labeling – specifically to address issues related to PALs – and outline guidelines for the labeling of prepackaged food such as those distributed at schools, on airlines, and in other public venues. Additionally, the committee recommended that federal agencies re-imagine and standardize food allergy and anaphylaxis response training for employees who work at public venues (schools, airlines, etc).

 


 

I was encouraged to listen to the guidance from the committee in each area.  There is certainly a long way to go in getting federal and state-level attention for the growing epidemic that is food allergies.  But by identifying current gaps and taking action to improve communication of standardized, evidence-based information and advice, I am confident we can help improve the lives of those living with food allergies in the near future.

 

Managing Food Allergies In the Snow November 30, 2016

winter sledding in the snow, winter break

photo taken by Kevin Jarrett

Winter is an important time to get outside. It leaves you feeling refreshed and invigorated. Winter weather invites us to engage in all kinds of fun and unique activities. Ice skating and hot chocolate go hand in hand. Snow days beg for sledding down sleek hills. Cross-country skiing, snow shoeing, and even hiking are fabulous ways to appreciate the quiet beauty of the season.

 

And, of course, there’s my personal passion: skiing.

 

No matter what your winter passion is, please read Let It Snow! (below) for some important tips on how to carry your epinephrine auto-injector and how to manage your food allergies in the cold and on the slopes!

 

See our story and read how to enjoy – not endure – the season in the Winter 2016 edition of Allergy & Asthma Today:

 

Allergy & Asthma Today – Winter 2016

Or read it here:

Let It Snow!  Managing Food Allergies In the Snow

Our family loves wintertime and winter sports – skiing, sledding, ice skating, you name it. My son has multiple food allergies, so we always carry epinephrine auto-injectors with us, even in the cold, and we make sure they are safe and secure.

 

Epinephrine must be kept at room temperature in order for the medication to remain effective. When you plan to go outside in the cold, carry your auto-injectors in the inside pocket of your winter coat.

 

If you have no interior pockets, or they’re not big enough, get creative. We made a holder for our epinephrine auto-injectors using a pencil case and a lanyard – anything to keep the epinephrine close by and at the correct temperature.

 

Gone Skiing

 

When my son was old enough, my husband – an avid skier – was excited to get him on the slopes. But the idea of trying to manage his food allergies on a ski vacation seemed challenging.

 

Who could I track down to get ingredient information for food in the ski lodge cafeteria? How was I going to store and easily access snacks and lunches that were safe for my son? Could I rely on the ski school to look out for him and his food allergies?

 

During recent ski trips, we found food service employees were knowledgeable about food allergies. Several of my son’s ski instructors needed no introduction to epinephrine auto-injectors – some had food allergies themselves, which made them even cooler in my son’s eyes.

 

The staff walked him through cafeteria lines, read ingredient lists, and helped him find safe alternatives for group snacks – all at 10,000 feet.

 

If you’re planning a trip to a ski resort, here are some food allergy tips:

 

  1. Call ahead. Ski lodge operations may seem relaxed, but they do take food allergies seriously. We spoke with a food services manager at one ski lodge who outlined their offerings, looked up food suppliers and tracked down ingredients for us – all before we stepped foot in the snow. Ask about the lunch routine during ski school and what kinds of food students receive. Are they given snacks? Do they have free choice in the cafeteria?

 

  1. Show up for ski school classes early with your epinephrine auto-injectors. Talk with your child’s ski instructors and if necessary, teach them how to use an epinephrine auto-injector – and when to use it. Remind them they will need to store it in an inside pocket of their ski jacket to keep it close to room temperature.

 

  1. Consider meeting up with your child’s ski school class for lunch to help your child navigate the cafeteria line. But don’t expect to eat with them! Skiing creates fast friendships and your child will have more fun hanging out with their ski buddies.

 

  1. Pack some safe snacks and store them someplace readily accessible. Kids are often hungry when they get off the slopes and ski lodge cafeterias typically close right when the lifts do.

 

Now … Bring on the snow!

 

 

Breathing Easy On the Slopes

 

Many people with food allergies also have asthma. When outside in wintertime, cold, dry air can be an asthma trigger. Wrapping a scarf around your nose and mouth warms the air you breathe and helps keep the rest of you warm as well. Tuck a quick-relief bronchodilator inhaler into an inside pocket of your jacket just in case you start to cough or wheeze.

Food Allergies

Enjoying a fantastic winter vacation. Skiing in Park City, Utah.

 

Stock the Shelves for Families with Food Allergies November 22, 2016

With the holidays upon us, gratefulness should be at the forefront of our minds.  It’s certainly on mine.  And, while I am so thankful for so many things, I can’t help but think of those who may be enduring hardship.

 

cans-salvation-army-usa-west

unaltered photo from Salvation Army USA West via Flickr at http://bit.ly/2gcaVDo

 

In 2013 (and each year since), my sons and I have volunteered at a food assistance center in our area.  As I detail in my original post, Thankful (Nov. 2013), my eldest son – who is allergic to peanuts, tree nuts, sesame seeds and dairy – took me aside as we were sorting donations.  “I couldn’t make a meal out of anything in here,” he whispered.  He was concerned that if a kid like him had to rely on a food pantry for his or her meals, they’d leave hungry.  In reality, his worry is not unfounded.  Food insecure families with food allergies are forced to make difficult decisions every day.

 

So, let’s try to make things a little easier for those with food allergies who are in need this holiday season.  If you can, I encourage you all to donate food allergy-friendly food to your local food pantry or regional food bank.  When you do, please attach the forms below to request that your donation be set aside for another food allergy family or individual.

 

AllergyStrong/Allergy Shmallergy Food Donation Forms

 

And, if you or someone you know works at a food pantry, please ask them to contact us at erin@allergystrong.com.  We’d love to work with local and regional pantries to help them support food allergy families year-round.

 

Some Suggested Items to Donate

  • Sunbutter, Soynut Butter, Wowbutter, or other alternative to peanut butter
  • Gluten-free Pasta
  • Dairy-free, long shelf-life Soy, Rice or Coconut Milk
  • Rice or Corn-based Cereal
  • Gluten-free cereal and oatmeal
  • Rice-based meals
  • Ener-G Egg Replacer
  • Gluten-free, dairy-free or egg-free baking mixes (muffins, etc)