Allergy Shmallergy

Simplifying life for families with food allergies.

Food Allergies on a Budget September 9, 2022

It is no shock for those of us who live with this condition to learn that food allergies are expensive. The cost of medical care on top of prescription auto-injectors, grocery bills, time away from work to manage our condition, special child care (and sometimes schooling) can add up quickly. According to a 2013 study out of Northwestern University by Dr. Ruchi Gupta and others, food allergies cost over $4,100 per child in the U.S. That’s a total of over $20 billion dollars a year carried by patients and their families; $25 billion when other costs are factored in. To reduce the expense of food allergies on an individual or families budget, we need to look at a few key areas:

Prevention

From the Northwestern study, it is clear that prevention saves money. Hospitalizations accounted for the largest direct medical cost with emergency department visits coming in third. One way to manage your medical costs is to check in with your healthcare provider annually. Be sure to discuss any changes in your allergy, realistic risk and lifestyle management as well as treatment options available to you. Treatment can help protect you from accidental exposure by potentially lessening the symptoms of a reaction and keep you from needing emergency services.

Epinephrine Auto-Injectors

At that same yearly appointment, ask your healthcare provider which epinephrine auto-injector would be best for your lifestyle. Carrying a set of epinephrine auto-injectors is key to food allergy management and using it at the first signs of anaphylaxis can keep you out of the hospital and on the road to a quick recovery. There are many auto-injectors on the market to choose from, so finding one that fits your life should be easy. To make these more affordable:

  • Call your insurance company to see which auto-injectors they cover and at what rate. Ask questions about how often you can renew prescriptions so that you can plan accordingly when you need a second (or third) set for work, school, or child care locations.

Food

Finding and buying allergy-friendly food can be a challenge. Dairy, egg, soy and wheat allergies – especially in combination – make purchasing safe food difficult and expensive. People with food allergies often need to shop at multiple supermarkets to find costly allergy-friendly products they can use. To save money on groceries, consider a few things:

  1. Sign up for coupons on your favorite allergy-friendly manufacturers’ websites. While many stores don’t offer discounts on these “free-from” products directly, companies often offer. For example, if you scroll to the bottom of their homepages, Enjoy Life foods, Sunbutter, and others, offer coupons for both American and Canadian customers.
  2. Use simple substitutions. Sure, you can bake with a speciality egg replacer at $6.50 a box. OR, you could use applesauce ($3.25 per jar).
  3. Buy in bulk. We all know that bulk pricing is often lower per unit (ounce, pound, etc) than their smaller counterparts. Consider buying food that you use often in larger quantities. Also consider splitting the cost and contents of a bulk item (especially if it will spoil, like fruit, vegetables or meat) with a friend or member of your family – that way, you both get the best price!
  4. Create a meal plan that utilizes leftovers from one meal to create another later in the week. You might have hamburgers one night and use the leftover ground meat to make tacos, meatballs, or chili another night.
  5. Create a shopping list and stick with it. If you plan your meals, this is all you should need for the week or month.
  6. Once you have your list, visit the website of the supermarkets near you to find the best prices. One store may be having a sale on just the item you need! And while you’re there, sign up for and take advantage of store loyalty cards. You can load coupons and discounts onto the card itself, so that all you need to do is enter your phone number at checkout to receive all the savings.
  7. Save yourself a trip to a second or third store for those few allergy-friendly products they stock. Each stop means more time, more gas, and more temptation for impulse purchases. See if your item can be shipped to you via Amazon, Peapod, Walmart, Target, Costco, etc.

Food Assistance

Food assistance programs are a great way to get the food you need. Both the Supplemental Nutrition Assistance Program (SNAP) and Women, Infant, Children programs (WIC) are run by each state and offer a monthly stipend to be used on qualified products. Hint: your SNAP dollars go further at farmer’s markets!

Contact your local school to discuss availability of free breakfast and lunch programs. Some programs extend into the summer months, so be sure to inquire about how to access that benefit after school ends. These programs are available through the USDA and other non-profit organizations. While you’re there, also ask about weekend backpack programs run through food pantries and other non-profits.

If you need further assistance, contact a local food bank or food pantry. There are many tips for safely navigating the food pantry, so be sure to read through these suggestions. If possible, sign up to choose the items you need yourself (rather than having a box preprepared for you) – that way, you can pick food you like and read ingredient lists to make sure they are free from your allergen.

Medical Care

Contact your state to see if you qualify for Medicaid, an insurance program that provides medical coverage for individuals and families. If you do not, consider the Children’s Health Insurance Program (CHIP), also offered by each state. CHIP provides low-cost medical coverage to children (and sometimes to pregnant women) who earn too much to qualify for Medicaid. Like Medicaid, CHIP covers routine check ups, vaccinations, dental and vision care, emergency services and more.


There’s no doubt that food allergies are expensive. But taking care of yourself, planning ahead, and reaching out for help when needed can go a long way in reducing cost AND stress.

 

Food Allergy Awareness Week May 9, 2022

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AllergyStrong Food Allergy Awareness Month

Food Allergy Awareness Week (FAAW) brings attention to food allergies, a growing epidemic worldwide that affects up to 250 million people. But for those of us already living with this condition, FAAW is an excellent time to review important food allergy information, make changes to your food allergy routine and educate yourself on new information to improve your quality of life.

As the melodious Julie Andrews sings in The Sounds of Music, let’s start at the very beginning:

Food allergies are an immune system response to food. The immune system mistakes food for foreign substance and begins mounting an internal attack on it. For someone with a food allergy this results in a variety of symptoms that can range from mild to severe, to life-threatening.

To review symptoms of a reaction and anaphylaxis as well as how a young child might describe those symptoms, please see below.

The Language of a Food Allergic Reaction

There is no cure for food allergies. The most recommended treatment is food avoidance – that is strictly avoiding your allergens. While this sounds simple, food avoidance can be difficult to manage, time consuming, and costly.

For more information on US labeling laws and how to read food labels for allergies, please see below.

The Ins and Outs of Reading Food Labels

Some people with food allergies are pursuing a treatment called oral immunotherapy (or OIT). This is one of several treatments that offer “bite protection” for those with food allergies. This means, it would lessen or eliminate a reaction if someone with food allergies accidentally ingested their allergen. OIT and other similar therapies (like sublingual immunotherapy (SLIT), epicutaneous immunotherapy (EPIT), etc) offer protection but not a cure.

To learn all about OIT, please read the article below.

Food Allergy Treatment: OIT 101
Photo by cottonbro on Pexels.com

Food allergies are more common among adults than children. Studies show that 1 in 12 children have a food allergy whereas 1 in 10 adults do. Not only do food allergic kids grow to be adults, but adults are acquiring new food allergies in adulthood. These adults suddenly find themselves allergic to food they may have safely eaten their whole lives and navigating that change can be difficult.

To learn more about the impact of adults with food allergies, please see below.

The Impact of Adult On-Set Food Allergies

As we move through this week, we’ll explore several ways to make life a little better for you and the 32 million other Americans living with this chronic condition.

 

FDA Approves First Generic EpiPen September 6, 2018

The U.S. Food and Drug Administration (FDA) has recently approved the first generic EpiPen to be made by Teva Pharmaceuticals.  There are currently several brands of epinephrine auto-injectors available to patients:  Mylan makes EpiPen, EpiPen Jr. and its own brand-sponsored generic; kaléo offers Auvi-Q; and Impax Laboratories markets Adrenaclick.  However, this generic EpiPen by Teva Pharmaceuticals will be the first time a non-brand alternative is available.

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Obtaining approval from the FDA for a generic was complicated by the fact that both the medication (epinephrine) as well as the device itself had to be reviewed.  There is no firm estimate on when to expect this new generic on the market or the cost of the product once it gets there.

 

The competition generated by a generic should help the epinephrine auto-injector market. To date, Mylan’s EpiPen has nearly monopolized the market but its exorbitant cost has gained unwanted attention.  Mylan’s EpiPen price has risen over 400% in the last 10 years to over $600 a set.  To counter the negative press, Mylan created their own generic EpiPen which still average $300 per set.  Patients and families are hoping the introduction of a true generic device will drive down the cost of the absolutely necessary, life-saving devices as well as help to prevent epinephrine auto-injector shortages like the one we’re experiencing presently.  They’re also hopeful this generic will help expand options covered by their insurance plans.  Doctors, emergency workers and advocates are also optimistic that this may help get epinephrine in the hands of patients who may otherwise be unable to afford it.

 

 

 

Visiting Amusement Parks with Food Allergies June 18, 2018

Headed to an amusement park this summer?  It’s a good time to plan your meals ahead so you don’t have a meltdown on your hands.  And, navigating an amusement park can be easy!  In fact, you may be surprised to see how many major amusement parks are well-prepared for guests with food allergies.  If you’ve recently visited an amusement park, please be sure to leave us a comment and let us know how it went!

 

Headed to an amusement park?  Consider these tips:

 

  • Pack (or ship to your hotel) snacks and hard-to-eat-safely items like breakfast, hamburger rolls, granola bars and desserts.
  • Bring a collapsible cooler (AND freezable cooler packs) to tote into the parks for the day.  They are great at storing safe food as well as keeping epinephrine auto-injectors cool during long, hot days.
  • ALWAYS carry two auto injectors.  Everyone wants to carry as little as possible to an amusement park, but two auto-injectors MUST come with you.  Consider a small backpack with a zipper so you’re not bogged down with a spillable purse or tote bag.  You’re going to need sunscreen anyway…!
  • Contact culinary services at least a week in advance to ensure you have a fun, easy and SAFE day at the park!

 

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Walt Disney World, Disney Land and Associated Properties

Disney is renowned for how it accommodates guests with food allergies.  They are truly the gold standard.  Guests can review menus and have access to chefs to obtain further information.  It is recommended that you discuss your food allergies with each server, as always.  There’s lots of excellent information and suggestions online, including contacting them prior to your trip should you have 4 or more allergens and how to bring safe food into the parks.

Disney Special Dietary Requests

 

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Universal

Universal Orlando recommends prepping for your trip by reviewing menus and discussing your allergies with a Guest Services advisor.  Plus, they outline how to bring your own food into the park should you need to!

If you’re headed to Universal Studios Hollywood, you’re in luck:  you can easily view what’s safe online.  Call Guest Services if you have multiple food allergies or further questions.

Universal Orlando Food Allergy info

Universal Studios Hollywood Dining Food Guide

 

Legoland

Legoland refers guests with food allergies to a Dietary Guide that doesn’t connect at the present moment.  They also suggest contacting  LLF-Food@legoland.com prior to your visit to answer specific questions.  Per their guidelines, outside food and drinks may be brought into the park for dietary needs.

Legoland Florida – Food Allergies

Outside Food and Alcohol Policy

 

 

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Seaworld

Did you know that Seaworld has designated dining facilities for visitors with food allergies?  There is at least one restaurant in each of their parks that is best suited to handle food allergy issues and preparation.  Click each link to read more about Seaworld’s food allergy preparations and policies.

Seaworld Orlando Food Allergy Info

Seaworld San Diego Food Allergy Info

Seaworld San Antonio Food Allergy Info

 

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Hershey Park

In addition to making allergen menus available at most of Hershey Park’s restaurants, dining for those with food allergies has just gotten easier with the addition of a gluten-free, nut-free, fish and shellfish-free restaurant.  Hershey notes that every nursing station is equipped with EpiPens, but – as always – remember to bring your own.

Hershey Park Food Allergen Information

Hershey Park Food Allergen Information

 

Sesame Place

Sesame Place keeps its allergen information to individualized questions.  They ask that guests ask specific questions to  AllergenfriendlySPL@sesameplace.com at least 3-5 business days in advance for additional information. A culinary representative will work with each guest to ensure a safe dining experience.  Guests with food allergies are allowed to bring in safe food.

Sesame Place Food Allergen Information

 

 

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Six Flags

Six Flags have a variety of restaurants at each park.  While you cannot see an allergen menu on their site, you may be able to get the name of food vendors and research ingredients that way (for example, Six Flags Great Adventure has a Panda Express that a visitor could research).  Should you have food allergies, you can bring food inside the park.  If you plan on eating at one of the parks’ restaurants, be sure to ask LOTS of questions about ingredients and prep including french fry oil and cross contamination.

Six Flags

 

Busch Gardens

Busch Gardens seems to take food allergies seriously.  They answers a lot of excellent questions right on their website and provide ways of obtaining even more specific information should it be needed. Busch Gardens Tampa even offers allergen friendly dining facilities.  Again, collapsible coolers are allowed for those with dietary restrictions.

Busch Gardens Tampa Food Allergen Info

Busch Gardens Williamsburg Food Allergen Info

 

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Cedar Point

Cedar Point’s website identifies dining locations that serve certain allergens as well as a few that do not serve certain allergens.  If you have multiple food allergies, this may take a little cross referencing to find a few things that are safe.  They do not list information about brining in safe food from outside – so you may have to contact them directly.

Cedar Point Special Dietary Needs

 

Knott’s Berry Farm

Knott’s Berry Farms follows the same process as Cedar Point in identifying products and locations that use allergens.  They also identify certain locations and products that are free from specific allergens.  Again, they do not list if you can bring in safe food from outside the park. Contact them directly should you need additional information.

Knott’s Berry Farm Dietary Needs

 

Canada’s Wonderland

Once again, Canada’s Wonderland follows the same process as Cedar Point and Knott’s Berry Farm in helping guests navigate the park.  They list dining options by allergen, so if you have multiple food allergies, expect to cross reference these lists.  They do not state whether or not you can bring in safe food from outside of the park.  Contact them directly with additional questions.

Canada’s Wonderland Dietary Needs

 

 

 

Your Must-Read Allergy and Asthma Resource April 26, 2018

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Check out The Allergy & Asthma Network’s fantastic and informative publication Allergy & Asthma Today.  You can find it in your doctor’s office or online.  Not only does it contain information about food allergies, but it also covers asthma and other allergies as well.  I learn something new in every issue.

 

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The latest issue features two of my articles.  The first covers lupin allergies. (Have you heard of them?  You’ll want to learn more…).  And, the second article covers the backlash Sony Pictures faces following their decision to include an allergic reaction in the children’s movie “Peter Rabbit.”

 

Be sure to check these articles and all the others out today!

 

 

Creative and Fun Non-Food Ideas to Fill Your Easter Eggs March 25, 2018

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Having food allergies can be limiting during food-centric holidays.  They are especially hard for kids during candy-themed holidays like Easter, Valentine’s Day and Halloween.  Children with food allergies are often left out or feel excluded from the goodies AND the fun.

 

But it can be easy to make sure Easter is enjoyable for everyone.  Many families fill the candy void by using non-food treats.  If you need some inspiration for how to fill your Easter eggs this year, look no further!

 

1. Glow Rings:  Boys and girls alike love glow rings.  They fit any finger and extend the fun into the night.  Maybe it will send the kids outside while you clean up dinner!

2.  Sticky Hands:  You can ball these up easily and fit them inside eggs.  Sticky hands are perfect – kids love softly slapping against windows and mirrors and stretching them as far as they can go!

3.  Squishy Animals:  I don’t know exactly why, but these little squishy animals are addictive.  They’re a great replacement for fidget spinners and fantastic for the kid who loves collections.

4.  Stretchy Ninja Flyers:  Okay, full disclosure… I want these right now – for me.  They look like so much fun! Small enough to fit in your pocket (or egg!) and great for an active kid.  Have a contest to see how far you can make your ninja fly!  Be the fastest to fling and retrieve your ninja!

5.  Emojis!  Everything emoji-related is so popular right now.  Yes, even the poop emoji.  Especially the poop emoji!

6.  Itty Bitty Nail Polishes:  This set of Frozen-themed nail polish could be divided and placed in a number of eggs.  It will be like finding a rainbow!

7.  Wind-Up Toys:  These are fun for everyone!  Plus, this pack comes with 28 assorted toys.  Use some now, save some for later!  And, these are fantastic to bring to restaurants or other places where your children might need a little diversion.

 

Happy Easter everyone!

 

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(Thank you in advance! A portion of the proceeds of affiliate links go toward AllergyStrong.org – an organization aimed at helping at risk families with food allergies.)

 

Food Allergies on the Big Screen February 12, 2018

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Sony Pictures and the creators of the upcoming movie “Peter Rabbit” are facing a backlash from parents across the globe after it was revealed that the rabbits use a gardener’s food allergy to attack and impair him.

 

Food allergies are among several disabilities that are used as cheap gags in movies and on TV.  Sometimes, such as in the movie “Hitch” and on the TV show “Modern Family,” they garner laughs because the symptoms of anaphylaxis are so severe and fast-acting that they take the audience by surprise.  Sometimes they are used to show weakness or to emphasize low social status, like nerdiness.  In a recent Party City ad slated to run during this year’s Super Bowl, having a food allergy was deemed “gross” to convey it as annoying.

 

What makes the “Peter Rabbit” use of food allergies particularly distasteful is that 2017 was speckled with stories of food allergy bullying across the world; including the arrest of two young teenagers who knowingly used a peer’s food allergy against her sending her into anaphylaxis and at least one death – that of a 13 year old at the hands of his classmates who had snuck cheese into his sandwich at lunch.

 

The exclamation point on the “Peter Rabbit” case is that the rabbits reportedly state that food allergies are “made up for attention.”  Unfortunately, this plays on some people’s already-formed perception of food allergies and undercuts how serious they truly are.

 

The use of food allergies to prompt laughter reinforces stereotypes, spreads misinformation and strengthens the idea that food allergies are a choice meant for self-importance or as an inconvenience to others.  The use of food allergies in children’s media prays on the worst fears of children with food allergies and their families.  [1 in 13 kids in the United States have food allergies – that’s nearly 20 kids – and about 80 family members – in every screening of “Peter Rabbit” who live with the anxieties of the very severe consequences that just a small crumb of an allergen can trigger.]  These children are watching their nightmare come to life on the big screen.

 

The food allergy community is accustomed to hearing food allergies become the butt of a joke. Jokes, as distasteful as they are to some, may have their place in adult-oriented films and television shows (as is the case with the movie “Hitch” and “Horrible Bosses”).  But when it’s placed in children’s programming, it becomes unacceptable.  Exposure to such imagery, dialogue and attitudes during such a formative time in their lives can affect young audiences with food allergies (and influence those without) both psychologically and socially.  It can scare and scar those with food allergies.  And, showing it “even in a cartoonish, slapstick way” (as Sony describes it in their apology) teaches others that food allergies are not to be taken seriously.  By watching “Peter Rabbit,” kids are learning that using someone’s food allergy against them is both humorous and without consequence.  Meanwhile, children with food allergies are watching – horrified – while the audience jovially cheers the rabbits on. It’s amazing that storylines, such as this one, pass through vast numbers of people for approval without being questioned for their impact on children.

 

Thankfully, Sony has issued an apology recognizing the insensitivity of the “Peter Rabbit” material.  Let’s hope that other production companies learn from this lesson.  Apologizing after the fact is the easiest thing in the world.  How can we ensure that this doesn’t happen in the first place?

 

Allergy-Friendly Hanukkah Doughnuts: Buy Them, Make Them, Eat Them! December 12, 2017

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As a food allergy consultant to schools, I get asked all kinds of questions and involved in all sorts of projects.  Recently, I received a fun assignment!  My daughter’s school asked me to find a safe doughnut to help them celebrate Hanukkah while adhering to their strict nut-free policy.

 

Hanukkah is celebrated over eight nights – recognizing the miracle of the burning oil in the ancient Temple of Jerusalem.  Recognizing that miracle, celebrants everywhere look forward to the tradition of indulging in food fried in oil each night, including doughnuts!  I mean, if we must…

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Traditionally, Jews serve sufganiyot, a jelly doughnut during Hanukkah.  The Big Bang Theorys Mayim Bialik offers this awesome vegan recipe (which means it’s dairy and egg-free!):

Mayim Bialik’s “Unbelievably Delicious” Holiday Recipe – Hanukkah Sufganiyot

 

I will acknowledge, doughnut making can be time consuming and messy!  Preparing doughnuts from scratch is also tough if you’re trying to feed a crowd.  Krispy Kreme used to be the go-to Hanukah doughnuts for my own family as well as for the classrooms I teach in.  Now that Krispy Kreme donuts are decidedly not safe, where can you buy a nut-free doughnut?

 

Enter Katz’s Gluten-Free Donuts.  Sold in boxes of 6, these doughnuts are gluten-free, dairy-free, nut-free and soy-free!  You can find them in the kosher frozen food section of the supermarket.  There’s no preparation necessary – just thaw.  Or, for a mouthwatering experience, heat up for a few seconds in the microwave.  (I’m drooling as I write this…)

 

 

Be sure to check out our list of Allergy-Friendly BakeriesDun Well Donuts, The Donut Pub, Brandon’s Best Allergen-Free Sweets ‘N Treats and Amazing Donuts are just a few bakeries on our list that make doughnuts reviewers rave about.  There may be a bakery near you!  (And, if your favorite allergy-friendly bakery isn’t on the list, shoot us a note!)

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Food Allergies: Overcoming Disagreements November 27, 2017

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The holidays are a magical time – filled with hope and kindness.  But when you have food allergies, holiday gatherings are sometimes filled with the possibility of being excluded, disappointed, or the fear of having a food allergic reaction.

As parents and patients, we feel like we are constantly educating others about food allergies.  Our extended families and friends surely should know by now how real and severe a food allergy can be – shouldn’t they?!  Unfortunately, many times our family and friends don’t understand.  They underestimate the severity of a reaction and the amount of time and energy we put in to preparing for a regular day – never mind a holiday!  We often feel let down and angry when others don’t take food allergies into consideration or are set on upholding their traditions at the expense of someone else’s health and safety.

These disagreements around the holidays can set off a chain of unhealthy interactions that could cause relationships to strain.  Don’t end your relationship with family or friends.  Try the techniques outlined in the article below first and see if you can teach them about what your life with food allergies is really like.

Please read this article I wrote, published in the magazine Allergy & Asthma Today by the Allergy & Asthma Network, for more information.

http://bit.ly/2ncAJHY

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Important Story: FDA Warning to Mylan, Maker of the EpiPen, on Device Defects and Review November 6, 2017

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Earlier this fall, the FDA issued a warning to Mylan, the makers of EpiPens.  In a scathing letter, the FDA highlighted manufacturing defects as well as Mylan’s failure to conduct adequate internal reviews after receiving many complaints about the life-saving device, EpiPen’s malfunctions.  To date, there have been 7 deaths, 35 hospitalizations and 228 complaints about EpiPen and EpiPen Jr. devices this year.  [See F.D.A Accuses EpiPen Maker of Failing to Investigate Malfunctions, New York Times, Sept. 7, 2017]

 

Following an FDA inspection of the manufacturing plant, FDA’s letter to Mylan describes EpiPens that were leaking epinephrine and others that malfunctioned.  In March of this year, Mylan issued a recall of a small batch of EpiPen and EpiPen Jr devices.

 

While it is difficult to connect these defects to the deaths reported, as anaphylaxis itself can be deadly even with properly receiving epinephrine, these reports are not encouraging.

 

In February of this year, we had a frightening experience. [Please read the full story,  The Fire Drill- 5 Key Lessons from an Intensely Scary Night.]  Not long after eating at a restaurant, my 12 year old, food allergic son was rushed home, wheezing severely and coughing.  He was so weak and nauseous that he could barely stumble to the bathroom.  As I asked him questions, trying to evaluate the situation, it was becoming increasingly impossible for him to speak at all.  I wheeled around to grab my EpiPens just steps from where my son sat.  When I turned back around, he was blue.

 

This is every parent’s worst nightmare.  It was certainly mine.  Amidst the chaos of an increasingly critical and deteriorating situation, my only saving grace was that I held in my hand an EpiPen that would contain the correct amount of the life-saving drug, epinephrine and deliver it safely.

 

I can’t imagine being in that same moment now, knowing that the EpiPen in my hand may or may not save my son’s life.  That it may or may not have the right dose of medicine.  That the needle may or may not misfire.  Would the knowledge of EpiPen defects cause you to hesitate?  Would you instead call an ambulance that would take even more time to arrive?  When minutes matter, these short hesitations in action, improper delivery of medication, and any other complications that arise during anaphylaxis could be costly…. even deadly.

 

Bear in mind, Mylan has also increased the cost of EpiPen from $50 in 2008 to over $600 currently.  And, while the high cost of EpiPens are prohibitive, parents are still buying them, and they’re paying for one thing:  reassurance.  They pay for the firm knowledge that this product administers the correct amount of medicine properly every time.  If that can’t be demonstrated, there are plenty of other auto-injectors on the market with a proven track record of reliability to consider.

 

Despite these less-than-comforting reports, please continue to carry and use your EpiPens and other auto-injectors.  According to the FDA in a recent Bloomberg article, “We are not aware of defective EpiPens currently on the market and recommend that consumers use their prescribed epinephrine auto injector. We have seen circumstances in which adverse events reports increase once a safety issue is publicized, like a recall. We continue to monitor and investigate the adverse event reports we receive.”

 

I plan to keep you all informed as we continue to follow this story.

 

To read more on this story, please see EpiPen Failures Cited in Seven Deaths This Year, FDA Files Show posted on Bloomberg, Nov. 2, 2017.

 

Creating a Halloween for EVERYONE October 19, 2017

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Halloween is traditionally frightful.  Between the the ghosts and zombies milling about,  candy and party food shouldn’t be scary.  But the chaotic and exuberant fun of Halloween can be chilling for many families with food allergies.

 

Parents with food allergic children are justified in worrying when their kid comes face to face with his food allergy.  And, candy is full of allergens: dairy, peanuts, tree nuts, soy, wheat, corn, egg…  It’s a wonder we survive!

 

Here are a few ways to keep your sanity during the craziest night of the year:

 

  1. Prepare your kids:  Remind them not to eat anything while they are trick-or-treating.  Reading ingredient lists on tiny packages in the dark is challenging (to say the least).  There’s plenty of time to taste test their candy when they get home.
  2.  Go with them to the front door:  Help little ones choose safe candy at the front door.  Your presence is also a good place to reinforce all those lessons on manners while you’re there.
  3. Cash in the allergens: Keep a variety of safe substitute candy or treats at your house.  Offer to trade your child’s unsafe candy for your pre-approved substitutes.  If you’d rather your child ditch most of his candy, The Switch Witch is a fun and magical way to cash his or her candy in for a small gift.

     

  4. Be reminded that sometimes ingredients and/or manufacturing practices change when candy is miniaturized.  Make sure you read ingredient lists of everything, including candy that has been safe in a larger size.
  5. Participate in the Teal Pumpkin Project:  You’re familiar with all those wacky blue pumpkins, right?!  Teal pumpkins mean that house has non-candy treats to offer for food allergic children. Move over orange, teal is the new black!  You can spray paint your own pumpkin or purchase one to reuse, like this one:

     

    • Teal Pumpkin Decoration For Food Allergy Awareness
    6.  Stock toys AS treats:  Instead of candy (or in addition to safe candy), consider stocking fun toys and tattoos.  Even kids might admit that there is a limit to the amount of sugar they can consume and something that will last past Nov. 1st will be fun!  This Halloween set gives you a variety of toys in one order – bonus!

 

  • 156 Piece Mega Halloween Toy Novelty Assortment; 12 Halloween Ducks, 12 Halloween Pencils, 12 Halloween Sticker Sheets; 48 Halloween Erasers; 72 Halloween Glitter Tattoos!!

7.  Don’t leave home without it:  Auto-injectors need to go everywhere with you – including trick-or-treating.  You know they’ll be carrying a bag!  Make sure that your child’s epinephrine auto-injector is in there with a flashlight.

 

8.  Allergy Shmallergy’s list of safe candy:  Sharing a holiday builds community.  Refer your friends and neighbors to Allergy Shmallergy’s list of nut-free candy to truly create an inclusive Halloween that EVERYONE can enjoy!

 

 

(Thank you in advance! A portion of the proceeds of the affiliate links go toward AllergyStrong.org – an organization aimed at helping at risk families with food allergies.)

 

Parenting Positively in the Face of Food Allergies September 29, 2017

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Last year, I had the pleasure of speaking with Lyndsay Edwards of Allergy Blog Awards UK.  In her podcast, she asked a lot of thought-provoking questions on the topic of parenting a child with food allergies.

 

Because of the challenges and risks associated with food allergic reactions, it is critical to raise food allergic children to be confident, resourceful, and self-advocating.  And all of that begins with a good attitude towards food.

 

Here is the transcript of Lyndsay’s well-crafted podcast [or listen here: Allergy Blog Awards UK – Allergy Shmallergy Living Positively with Food Allergies].

 


 

So, I know your son was diagnosed with a dairy allergy at 6 months old and other allergies by the time he was just 15 months old, can you just take us back to that time and what it was like for you getting the diagnosis?

 

Despite his eczema, acid reflux and asthma (conditions that I now understand to be related to food allergies), I was in denial.  Even though I followed her instructions to the letter, I scoffed at our pediatrician’s recommendation to avoid feeding my son a whole host of allergens as we introduced first foods.  “He’s probably not allergic to any of these!” I remember saying.

 

When she called us to discuss the results of my son’s blood test, revealing that he was allergic to eight different foods in addition to environmental allergens, I was completely overwhelmed.  I couldn’t stop wondering:

 

What does this mean Not only the test results, but also in a bigger sense:  what does this mean for his life?  Will he have a normal life?  And more importantly, what can I feed him for dinner tonight?!!

 

I found myself grieving for the hopes and dreams I had imagined for my child (like baking cookies and spontaneous trips to get ice cream), but then my husband snapped me out of it.  He reminded me that we would find work arounds.  And, if they didn’t exist, we’d create them!  Very quickly, THAT became my focus.

 

 

How do you cater for your son at home?  Do you all eat the same?

 

Because my son was allergic to so many foods, I had to learn how to cook (and fast!).  Unbelievably, he’s my most adventurous eater.  He loves everything seafood (no matter how crazy the dish), sushi…  and he’s consistently adding requests to his list.

 

These requests inspire me to learn how to cook all kinds of intimidating international cuisine.  No one who knows me would have EVER guessed that I regularly cook Chinese food or Persian or make all kinds of sushi.  In high school, I once burnt soup!  SOUP!

 

When he was a toddler (and an only child), I was making separate meals for my son.  But being a short order cook isn’t my strong suit and I didn’t want my son to feel like I was treating him differently because of his allergies.  In his own home, he should feel safe and included.  As I got better at reading recipes, swapping out his allergens for substitutes, I started serving only one meal (what a relief!).  I also began finding meals with optional parts (like tacos that you could stuff with cheese or not and make-your-own pizza night).  I now have quite a collection of tried and true recipes that are free of peanuts, tree nuts, sesame seeds, dairy and in many cases egg (an allergy my son has since outgrown).

 

 

When did you start your blog and what inspired you to do so?

 

It was very important to us to raise a confident child who felt capable in the world.  Food allergies are very stressful.  I wanted to share simple solutions with other parents and put out useful information so that families can remain calm and make informed decisions.

 

 

One of the things that really stood out for me on your blog is how you focus on teaching your son about his food allergies in such a positive way so that he doesn’t feel left out or sad, can you just explain how you do that and what has worked for you and your son?

 

We have repeated the message that everybody deals with something – sometimes that “something” is invisible to the eye, like food allergies.

 

We try to downplay the importance and emphasis on food.  For example, we try to reward achievements with activities rather than treats.

 

And, we remind all of my kids that the best party of any party is always the company, hardly ever the cake.

 

Involve your kids in problem solving.  We can’t control the fact that my son has food allergies, but I can give some control OVER them by getting his input on overcoming obstacles.

 

Prepare, prepare, prepare to provide special treats in anticipation of special events.  Bring a gluten-free cupcake to the party; pack a sesame-free hamburger bun for the barbeque; carry a little dairy-free butter out to dinner.  Create positive experiences around food and demonstrate how easy it is to overcome challenges.

 

Let him vent!  We’ve taught my son the names for his feelings and encouraged him to talk about them.  First, children need to know the language to use to express their emotions.  Then they can engage in an open dialogue to release stress and give parents an insight into how they are experiencing the world.

 

 

Ok, before I get to my last question, can you tell everyone where they can find you on social media, your website, etc?

 

Yes, of course!

[You all know where Allergy Shmallergy is! shmallergy.wordpress.com]

Twitter: @shmallergy

Facebook:  Allergy Shmallergy

Instagram: shmallergy

 

 

And my final question is if you could give allergy parents one tip, what would it be and why?

 

Help prepare your child to negotiate the real world: practice asking questions, allow them to speak to a waiter, in short: EMPOWER them!  Give them the tools to tackle the world!

 

And, provide a safe place for them to come home to. A safe home environment (free of allergens) as well as a safe space psychologically where they can relay their triumphs and articulate their frustrations without judgment or anxiety and find support.

 

That’s two tips (sorry!), but I hope they’re both helpful!

 

 
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